EP 118: The Power of Storytelling: Lindsay's Big Heart and HCM Awareness
In this week's episode, Dr Ankur Kalra welcomes authors Dr Srihari Naidu and Lindsay Davis to discuss their newly published children's book, Lindsay's Big Heart. A leading interventional cardiologist, Dr Naidu, and patient advocate, Ms Davis, have collaborated to bring the complex heart condition hypertrophic cardiomyopathy (HCM) to life for young readers.
Lindsay Davis shares her personal journey with HCM, offering a firsthand perspective on the challenges and triumphs of living with the condition. Dr Srihari Naidu discusses the importance of translating complex medical information into a format that children can understand and appreciate. As a parent himself, he was inspired to create a resource that would help families navigate the complexities of HCM.
The authors share the challenges and rewards of bringing Lindsay's Big Heart to publication, from securing a publisher to finalising the illustrations. They believe that the book can help children feel more informed and empowered, reducing fear and anxiety associated with HCM. Additionally, they hope the book will raise awareness of the condition and encourage early diagnosis and treatment.
Join us as we delve into the inspiration behind the book, the writing process, and the importance of accurate and engaging medical education for children.
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Ankur Kalra’s guests Michelle Morse (Founding Co-Director of EqualHealth and Assistant Professor at Harvard Medical School) and Lauren Eberly (Cardiology Fellow at the University of Pennsylvania) are co-authors of a retrospective study that demonstrated what had previously only been observed: That black or brown heart failure patients ended up in general medicine rather than specialised cardiology services. Following the publication of the study in November 2019, the Health Equity Committee started to roll out anti-racism trainings and to work on objective admission guidelines to mitigate biased behaviours.
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