Joe’s journey as a patient with congenital heart disease set him on a route of becoming a professional patient advocate. Since 2016, his non-profit organisation, Team Uncle Joe is helping patients and families to better understand and help navigate CHD.
Parallax host Dr Ankur Kalra invites Joe Valente, a Board-Certified Patient Advocate (BCPA) and Co-Founder of Team Uncle Joe, to talk about his mission and practical considerations involving CHD care both from a patient and a healthcare provider perspective. In this informative and practical episode, Joe shares details about the process of getting certified as a BCPA and about the work that goes into setting up a non-profit organization. We learn more about how he and his team can support patients with CHD and what he considers to be the pillar of good patient-doctor communication.
To learn more about Joe’s work please visit this website: https://teamunclejoe.org
What were the most educational and the empowering experiences as a patient for Joe? What does being a Board-Certified Patient Advocate (BCPA) mean? How can Team Uncle Joe support patients?
Questions and comments can be sent to “podcast@radciffe-group.com” and may be answered by Ankur in the next episode. Guest @JoeyV1in100, hosted by @AnkurKalraMD. Produced by @RadcliffeCARDIO.
Brought to you by Edwards: www.edwardstavr.com
Parallax’s guest this week is Dr Eric David Adler, Medical director of heart transplant and mechanical circulatory support at UC San Diego Health.
How did Dr Gragossian receive her diagnosis? How does she feel about her new reality? What drives her? What is her message to our listeners?
Just after 9/11, Heval, the 18-year-old Syrian Kurdish refugee found a job as a dishwasher. At this point, he was the sole provider of his family. The pressure that comes from being poor did not leave him for many years. Today, he is firm believer in giving back to underserved communities by spreading awareness within the medical community. As he says, well-meaning people of privilege are sometimes afraid to act. What we need is more people to bridge the gap and find ways to help each other.
What drives Dr Nishtha Sodhi? What were the formative moments of Dr Sodhi’s career? What are the new frontiers of cardiology?