EP 64: Patient Advocate, CHD Care and the Mission of Team Uncle Joe with Joe Valente
EP 64: Patient Advocate, CHD Care and the Mission of Team Uncle Joe with Joe Valente

Average (ratings)
No ratings
 
  Your rating

Joe’s journey as a patient with congenital heart disease set him on a route of becoming a professional patient advocate. Since 2016, his non-profit organisation, Team Uncle Joe is helping patients and families to better understand and help navigate CHD.

Parallax host Dr Ankur Kalra invites Joe Valente, a Board-Certified Patient Advocate (BCPA) and Co-Founder of Team Uncle Joe, to talk about his mission and practical considerations involving CHD care both from a patient and a healthcare provider perspective. In this informative and practical episode, Joe shares details about the process of getting certified as a BCPA and about the work that goes into setting up a non-profit organization. We learn more about how he and his team can support patients with CHD and what he considers to be the pillar of good patient-doctor communication.

To learn more about Joe’s work please visit this website: https://teamunclejoe.org

What were the most educational and the empowering experiences as a patient for Joe? What does being a Board-Certified Patient Advocate (BCPA) mean? How can Team Uncle Joe support patients?

Questions and comments can be sent to “podcast@radciffe-group.com” and may be answered by Ankur in the next episode. Guest @JoeyV1in100, hosted by @AnkurKalraMD. Produced by @RadcliffeCARDIO.


Read MoreRead Less
Share
Edwards logo

Brought to you by Edwards: www.edwardstavr.com

Read MoreRead Less
Up Next
EP 65: Industry Pathway ,“Who” Luck, and Thinking Big with Dr Shon Chakrabarti
EP65 • Mar 14, 2022 • 41m 44s
In this rich and candid episode, Dr Chakrabarti recalls the early stages of his career and the non-linear route that led to his transition from an interventional cardiologist to working on devices that focus on improving the treatment of deep vein thrombosis (DVT). This journey was paved by self-reflection, hunger for tangible results, and connections with mentors who dared to dream big and wished the same for their mentees.
Read More
All Episodes
Mending the broken house of cardiology with Roxana Mehran
EP31 • Apr 23, 2020 • 40m 55s
This week’s guest, Prof Roxana Mehran, Professor of Medicine at Mount Sinai and Founding Director of Women as One, is a phenomenon in interventional cardiology. Her pioneering work as clinician, trialist and advocate is well known within the community. In this episode, we learn what makes Roxana tick and what were the odds she had to defy as an immigrant from Iran to fulfil her ‘impossible dream’.

The charity organisation, Women as One is an agent for women and men to be part of medicine that is built on talent, rather than a privilege. Roxana and Ankur discuss the role of mentorship and family-friendly work environment in mending the broken house of cardiology. Roxana talks about the practical tools that are available for women to take the next steps in their career and achieve their goals.
Read More
Laura Mauri on career decisions, mentorship and advancing medicine
EP30 • Apr 23, 2020 • 37m 30s
This week’s guest is Dr Laura Mauri who became Vice President of Global Clinical Research and Analytics at Medtronic in 2018 after an illustrious career in academic medicine at Brigham and Women’s Hospital and Harvard Medical School.

Dr Kalra asks Dr Mauri about early influences and her traineeship with legendary interventionalists, the late Donald Baim and Richard Kuntz. Dr Mauri talks openly about her decision-making process and the importance of selecting your priorities and committing to them. Ankur asks Laura about her decision to go into industry. Laura shares her thoughts on medical innovations and meeting urgent needs with unique perspectives.

What is Dr Mauri’s advice for a young cardiologist? How did she balance research and patient care? What are the questions that helped her decision making? How does Dr Mauri think about innovations in medicine?
Read More
Institutionalized Racism in Healthcare
EP29 • Dec 16, 2020 • 46m 48s
In the early days of the Black Lives Matter movement, a group of internal medicine residents posed a question: What can we do about racial disparity within our institution? 

Brigham and Women’s Hospital’s Health Equity Committee decided to confront the status quo by asking: How is racism on a structural level present within our walls?

Ankur Kalra’s guests Michelle Morse (Founding Co-Director of EqualHealth and Assistant Professor at Harvard Medical School) and Lauren Eberly (Cardiology Fellow at the University of Pennsylvania) are co-authors of a retrospective study that demonstrated what had previously only been observed: That black or brown heart failure patients ended up in general medicine rather than specialised cardiology services. Following the publication of the study in November 2019, the Health Equity Committee started to roll out anti-racism trainings and to work on objective admission guidelines to mitigate biased behaviours.

Aarti Bhatt (Assistant Professor of Medicine at the University of Minnesota), member of the Minnesota chapter of Campaign Against Racism, talks about their initiative to support projects that have a positive impact on local communities on a global scale.
Read More
Unified pathways for treating structural heart disease
EP28 • Apr 23, 2020 • 37m 35s
Heart surgery is not the best option for every patient suffering from structural heart disease. This was recognized by interventional cardiologist Anmar Kanaa’N and cardiac surgeon Joseph Lahorra who decided to unify their skillsets and bring the Structural Heart Program to life. Their vision was to offer patients with heart valve diseases all available options at Cleveland Clinic’s Akron General.


In this week’s Parallax, Dr Kanaa’N, the director of the program, and Dr Lahorra, chairman of the Heart, Vascular & Thoracic Department of Akron General introduce the listeners to the foundations of their program and the paradigm shift brought by TAVR.
Read More
CVD care with Grant W Reed
EP27 • Apr 23, 2020 • 32m 12s
The State of Ohio reported its first coronavirus cases on March 9. Prior to that, on February 28, the Cleveland Clinic announced that they are prepared to open 1,000 additional hospital beds if needed. Ohio was one of the states to follow recommendations and intervene quickly.

Ankur Kalra asks Grant W Reed, Director of the Cleveland Clinic’s STEMI program, to reflect on the actions they took and the challenges of delaying cardiovascular procedures in the wake of the coronavirus pandemic. Dr Reed offers insight on the factors that influenced the Cleveland Clinic’s STEMI policy for COVID-19. Ankur and Grant discuss the triage considerations for patients with structural heart disease and the steps the clinic took to protect its healthcare workers.




Read More
Lisa Rosenbaum's journey to medical journalism at NEJM
EP26 • Apr 23, 2020 • 44m 54s
Lisa Rosenbaum has been writing extensively about the human face of medicine. Her articles have been widely circulated by publications like The New York Times, The New Yorker and The New England Journal of Medicine.

In this edition of Parallax Dr Kalra asked Dr Rosenbaum about the influences that shaped her choices as a writer and as a healthcare professional. Dr Rosenbaum opens up about her childhood and how she connected to her grandfather through writing and medicine. We learn about Lisa’s first day at medical school and her latest writing project.
Read More
Clinician-Scientist During The COVID-19 Pandemic
EP25 • Apr 23, 2020 • 43m 40s
A week after Jag Singh had tested positive for 2019-nCoV, he became a patient in his hospital’s intensive care unit. This week he joins Ankur Kalra, MD to tell us about his journey as a clinician-scientist.

Jagmeet P Singh, associate chief of the cardiology division at Massachusetts General Hospital and professor of medicine at Harvard Medical School joins Ankur Kalra for a deep conversation about his journey across three continents. Dr Singh talks about the importance of choosing fulfilment over success. We gain more insights on the recent late-breaking trial, MADIT-CHIC focusing on cardiac resynchronization therapy. Ankur asks Jag about his experience of being on the other side of the healthcare system and his enrolment in the since halted remdesivir trial.
Read More
COVID-19 Lessons Learnings From Italy
EP24 • Apr 23, 2020 • 35m 4s
“It’s a tsunami not just a wave. The worst tsunami you can imagine”


Prof Michele Senni is Director of Cardiology at Papa Giovanni XXIII Hospital, Bergamo Italy. He contracted COVID-19 himself and in this latest podcast he meets with Ankur Kalra, MD to discuss his personal experience in dealing with patients and COVID-19 in Europe’s outbreak epicentre.


Hear them discuss the burden on healthcare, patient selection, the importance of testing and PPE and how COVID has resulted in a reduction of acute myocardial infarction and heart failure in patients.
Read More
23: COVID-19 And Cardiovascular Disease
EP23 • Apr 23, 2020 • 49m 22s
“We are at war with a pandemic and the enemy is not each other, it’s the virus.”


In this latest episode, Ankur Kalra, MD meets with Andrew Sauer, MD, co-author of an upcoming paper in US Cardiology Review on COVID-19 and Cardiovascular Disease that provides a concise and current summary of cardiovascular complications from COVID-19.


Hear them discuss the latest issues surrounding the pandemic, the known cardiac implications and the rapidly emerging data.
Read More
22: COVID-19 Lessons and Learnings From South East Asia
EP22 • Apr 23, 2020 • 32m 18s
In these unprecedented times, we provide an early release episode to gain insight on dealing with the COVID-19 pandemic from Deputy Editor in Chief of US Cardiology Review, a BDG interventional cardiologist, Bill Gogas, MD, PhD practising in East Asia.



Hear Bill’s take on how East Asia responded to and successfully managed the pandemic and how they are now seeing a significant reduction in cases outside the epicentre. Hear how the strategy resulted in only 93 patients in Bill’s city of Nanjing, testing positive for coronavirus with a city population of 8 million.



Learn about effective responses, the importance of early control and how as a cardiovascular physician, your life and practice may be impacted by the virus.

Submit your question to Ankur via: podcast@radciffe-group.com.


Hosted by @AnkurKalraMD. Produced by @RadcliffeCARDIO.
Read More
Parallax HFSA Edition: Diversity, Equity, Inclusion & Belonging with Dr Nancy M. Albert
EP56 • Oct 11, 2021 • 44m 26s
This week’s Parallax in collaboration with the Heart Failure Society of America (HFSA) explores the many ways organisations can embrace the needs of a diverse community and create a culture that can react to the realities of patientcare.
Read More
EP 55: 5 Interventional trials that will change your practice: Review of ESC 21 with Dr Mirvat Alasnag
EP55 • Sep 28, 2021 • 53m 38s
In the second ESC 2021 episode of Parallax, Dr Ankur Kalra’s guest is Dr. Mirvat Alasnag, interventional Cardiologist and Director of Catheterization Laboratory at the King Fahad Armed Forces Hospital (KFAFH) in Saudi Arabia. Dr Alasnag was a programme committee member at this year’s ESC and regional PI of one of the late-breaking trials presented.
Read More
EP 54: 5 Trials that will change your practice: Review of ESC 21 with Dr Purvi Parwani
EP54 • Sep 06, 2021 • 1h
In this special ESC 2021 edition of Parallax, Ankur asks Purvi to review the highlights of the congress. Purvi summarises the design and findings of the trials and their importance in the treatment of patients. Ankur and Purvi discuss how the novel data presented at ESC will inform their practice.
Read More
EP 53: Belonging, Sparkplug & Purpose with Dr. Nasrien E. Ibrahim
EP53 • Aug 23, 2021 • 52m 54s
Dr Ankur Kalra’s guest is Dr Nasrien Ezzeldin Ibrahim, Director of Heart Failure Clinical Research at Inova Heart and Vascular Institute and the writer of SPARKPLUG: The Roadmap to Confidently Ignite and Navigate Your Career Without Compromising Your Dreams.
In this candid episode of Parallax, Nasrien and Ankur open up about their experiences of being an immigrant. Ankur asks Nasrien about her journey to medicine. Nasrien shares the lessons she took away from her years under the mentorship of Dr JoAnn Lindenfeld and later, Dr. James Januzzi. Finally, Nasrien shares her recent experience of writing Sparkplug and how she embraced life with its imperfections and found her purpose.
Read More
Parallax HFSA Edition: Diversity, Equity, Inclusion & Belonging with Robert Mentz & Anuradha Lala
EP52 • Jul 19, 2021 • 53m 54s
This week’s episode starts a series in collaboration with the Heart Failure Society of America (HFSA). Host, Ankur Kalra’s guests are Robert Mentz and Anuradha Lala Senior Editorial Team of the Journal of Cardiac Failure (JCF), the official journal of the HFSA and the Japanese Heart Failure Society (JHFS).
In this practical and insightful episode, Dr Kalra asks what does diversity, equity, inclusion and belonging mean to the editorial board of JCF and what were the steps taken to put these principles into practice.
Read More